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Patient Voices: Cystic Fibrosis - The New York Times
https://www.nytimes.com/interactive/2017/well/patient-voices-cysticfibrosis.html
WEBOct 31, 2017 · Cystic fibrosis is a progressive genetic disease that causes persistent lung infections. It limits the ability to breathe and the ability to break down food and absorb vital nutrients. Less than 20...
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About Us | Cystic Fibrosis Foundation
https://www.cff.org/about-us
WEBThe mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high …
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Western New York Chapter | Cystic Fibrosis Foundation
https://www.cff.org/chapters/western-new-york-chapter
WEBThe Western New York Chapter of the Cystic Fibrosis Foundation welcomes you! Our chapter covers Buffalo, Rochester, and the surrounding areas. Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for …
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Central New York Chapter | Cystic Fibrosis Foundation
https://www.cff.org/chapters/central-new-york-chapter
WEBStaff. 200 Gateway Park Drive, Bldg C Syracuse, NY 13212 Email: [email protected] Phone: 315-463-7965. Amy Spranger Area Director [email protected] 315-463-7965 Paige Rodriquez Administrative Manager [email protected] 315-463-7965. Sarah Kimball Sr. Development Manager [email protected] 315-401-0122.
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About Cystic Fibrosis | Cystic Fibrosis Foundation
https://www.cff.org/intro-cf/about-cystic-fibrosis
WEBCystic fibrosis is a progressive, genetic disease that affects the lungs, pancreas, and other organs. There are close to 40,000 children and adults living with cystic fibrosis in the United States (and an estimated 105,000 people have been diagnosed with CF across 94 countries), and CF can affect people of every racial and ethnic group.
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Find a CF Care Center | CF Foundation - Cystic Fibrosis Foundation
https://apps.cff.org/ccd
WEBWe provide funding for and accredit more than 130 CF care centers nationwide, including more than 100 programs for treating adults with CF. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
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Opinion | Cystic Fibrosis Patients Had Early Deaths. But Now …
https://www.nytimes.com/2023/02/06/opinion/cystic-fibrosis-treatment.html
WEBFeb 6, 2023 · One woman in her 40s with cystic fibrosis withdrew her retirement money some years back to “live in the moment,” she said, because she assumed she would die before any traditional retirement.
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Learn About Cystic Fibrosis | American Lung Association
https://www.lung.org/lung-health-diseases/lung-disease-lookup/cystic-fibrosis/learn-about-cystic-fibrosis
WEBNov 17, 2022 · Cystic fibrosis is a life-threatening, genetic condition. Both parents have to be carriers of an abnormal gene that gets passed on to their child for the child to have CF. People with this condition produce a faulty CFTR protein that affects the cells of the body that produce mucus and sweat.
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A Legacy of Changing Medicine: Cystic Fibrosis
https://www.cuimc.columbia.edu/news/legacy-changing-medicine-cystic-fibrosis
WEBJun 28, 2022 · Early Columbia Pioneers Who Identified, Treated, and Advocated for CF. As far back as the 15th century, a European proverb cautioned parents: “Woe to the child who tastes salty from a kiss on the brow, for he is cursed and soon will die.”. The taste of salt on a child’s skin was known to herald an unavoidable death preceded by rasping agony.
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CF Care Center Visits | Cystic Fibrosis Foundation
https://www.cff.org/managing-cf/cf-care-center-visits
WEBCF Care Center Visits | Cystic Fibrosis Foundation. Quarterly visits to a CF Foundation-accredited care center are the foundation of your treatment plan. By partnering with your care team, you can also adjust your treatment plan as new therapies become available, or your needs change over time. 10 min read. In this article. Summary.
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